It's been so long since I've written a blog post, I wasn't sure I could remember how to do it. In the middle of the night, I determined that today I would write and post something.
I usually lie awake either in my bed or on the couch somewhere between the hours of 1:30-5:00 a.m. I remember when I took sleep for granted. When I loved bedtime. When I could fall asleep almost instantly upon putting my head on the pillow. Those were the days--I mean nights.
This morning when the numbers on my alarm clock read 3:26, I lie there looking at the inky splotches on my ceiling as the wind blew and shadows moved. In my mind, I thought: "The burning in my abdomen should light up this room." There is a constant smolder going on in my middle region, but at night it usually flares into a full-blown inferno. I thought my belly should be generating a glow brighter than the alarm clock. I pressed my hands across my stomach to smother the flames, expecting to get singed in the process. But my fingers were uninjured, even poised right over the blaze. I must have been awfully groggy to be having such strange thoughts.
I have seen 17 specialists since October. I've decided I'm done with doctors and hospitals. I had surgery in February which took care of some of the symptoms and problems I had been experiencing. But the main issue that started me on this 'Medical Madness Tour' is still here. The Tumor Board at McKay Dee Hospital took a look at my case last month. They pulled all the previous records of mesenteric masses they could locate. They discovered that it is extremely rare. The three cases they found, didn't end positively. As a result, they've decided to be completely 'hands-off' for fear of severing the mesentery artery or one of the many vessels branching off from it.
Now for the good news: My brother and his family from Singapore are going to spend the month of June in the states (a good portion of it in Utah--I hope!). My daughter, Camille, is engaged and getting married July 13. Dani and Kelly will travel from Baltimore and spend that month with us. Kevin and Lindsey are expecting a baby on September 1--our first grandchild!
I have a lot to look forward to!