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Tuesday, March 19, 2013

Looking Forward

It's been so long since I've written a blog post, I wasn't sure I could remember how to do it.  In the middle of the night, I determined that today I would write and post something.

I usually lie awake either in my bed or on the couch somewhere between the hours of 1:30-5:00 a.m.  I remember when I took sleep for granted.  When I loved bedtime.  When I could fall asleep almost instantly upon putting my head on the pillow.  Those were the days--I mean nights.

This morning when the numbers on my alarm clock read 3:26, I lie there looking at the inky splotches on my ceiling as the wind blew and shadows moved.  In my mind, I thought: "The burning in my abdomen should light up this room."  There is a constant smolder going on in my middle region, but at night it usually flares into a full-blown inferno.  I thought my belly should be generating a glow brighter than the alarm clock.  I pressed my hands across my stomach to smother the flames, expecting to get singed in the process.  But my fingers were uninjured, even poised right over the blaze.  I must have been awfully groggy to be having such strange thoughts.

I have seen 17 specialists since October.  I've decided I'm done with doctors and hospitals.  I had surgery in February which took care of some of the symptoms and problems I had been experiencing.  But the main issue that started me on this 'Medical Madness Tour' is still here.  The Tumor Board at McKay Dee Hospital took a look at my case last month.  They pulled all the previous records of mesenteric masses they could locate.  They discovered that it is extremely rare.  The three cases they found, didn't end positively.  As a result, they've decided to be completely 'hands-off' for fear of severing the mesentery artery or one of the many vessels branching off from it.

Here is a CT image of the Mesentery region in the small intestine (not mine). 

This illustrates how the main artery branches into dozens of smaller vessels 

which supply the digestive system. 

I can appreciate why doctors are reluctant to cut into that region.   

I'm very reluctant to allow any cutting in that spot myself, now.

Now for the good news:  My brother and his family from Singapore are going to spend the month of June in the states (a good portion of it in Utah--I hope!).  My daughter, Camille, is engaged and getting married July 13.  Dani and Kelly will travel from Baltimore and spend that month with us.  Kevin and Lindsey are expecting a baby on September 1--our first grandchild!   

I have a lot to look forward to!


Tina said...

Hey, You posted!!! I guess it is good thing I didn't look yesterday, or maybe I wouldn't have called you and talked in person.

What an interesting description of what you feel in your stomach. So sorry and sorry you are having a hard time sleeping. I get that way at times, for totally different reasons though.

Thoughts and prayers are with you. Wishing you the best in your pursuits for a healthier diet and the extra things you are doing for your health.

You are a GREAT lady. I'm glad to know you.

wendy said...

I hope some of this good news helps ease the physical pain you are suffering. I am so sorry to hear that.
And sleepless nights are the worst.

Lisa said...

I'm so happy to see your return to the "blog-sphere". I often stalk around to see what you are posting. Maybe the fire you feel in your belly is the finger of the Lord burning that little beast up so it won't bother you anymore.
I've decided that everything you need to know you can learn at primary. Both the wiseman and the foolishman had to deal with the rain and the flood but the wiseman built upon the rock of faith and covenant and he was blessed. You will blessed also.

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